Who is at risk?

In South Africa, Afrikaners have a carrier rate of 1 in 77, and 1 out of every 22,000 Afrikaners is born with FA.

Fanconi anaemia (FA) occurs in all racial and ethnic groups and affects men and women equally.

In the United States, about 1 out of every 181 people is an FA carrier. This carrier rate leads to about 1 in 130,000 people being born with FA.

Two ethnic groups, Ashkenazi Jews and Afrikaners, are more likely than any other groups to have FA or be FA carriers.

Ashkenazi Jews are people who are descended from the Jewish population of Eastern Europe. 1 out of 90 Ashkenazi Jews is an FA carrier, and 1 out of 30,000 is born with FA.

Afrikaners are White natives of South Africa who speak a language called Afrikaans. This ethnic group is descended from early Dutch, French, and German settlers.  In South Africa, Afrikaners have a carrier rate of 1 in 77, and 1 out of every 22,000 Afrikaners is born with FA.