Patients that have FA often need blood products sooner or later. Some patients end up receiving weekly blood transfusions to maintain their health. After a stem cell transplant, multiple units of blood and platelets are needed until the bone marrow starts functioning fully.
There is also a real need for more stem cell donors. With very few registered donors, the chance of finding a good match is very small.
Signing up as a stem cell donor and blood donor can help to save many lives.
Become a Bone Marrow Donor
Why should I donate?
For many this is just unthinkable, but each year thousands of South Africans (mostly children and teenagers) have to face the terrifying reality of life threatening blood disorders.
Fortunately, life threatening blood disorders such as leukemia, aplastic anaemia, immune deficiencies, in born errors of metabolism and other new indications such as auto-immune disorders can now be treated.
Treatment however entails a stem cell transplant from a willing donor and although it is sometimes possible for relatives to offer the closest matches, 75% of patients will not have a suitable sibling and will have to start their search for a matching unrelated donor (MUD).
Who do we need as donors?
Every healthy person between 18 and 50 can be a donor. “Tissue-types” are inherited characteristics, used in matching donors and patients. The likelihood, therefore, of finding a suitable volunteer will be considerably greater within the same ethnic background. Accordingly everyone is encouraged to sign up.
Become a Blood Donor
Who can donate blood?
Every healthy person between 16 and 65 years old can donate blood, if they:
- Weigh a minimum of 50kg
- Lead a low risk lifestyle
- Have a pulse of 50-100 regular beats per minute
- Have blood pressure between 180/100mmHg and 100/60mmHg
- Have a haemoglobin level of 12.5 g/dL or above
- You can donate blood 8 weeks after a previous donation.
- A platelet donation is similar and can be done again after 2 weeks.
- For more information, visit the SANBS website.
Other Fanconi Anaemia Websites
Our Mission: To find effective treatments and a cure for Fanconi Anemia and to provide education to effected families worldwide.
Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia Australia provides a variety of support services to families suffering Fanconi Anaemia, in addition to providing broad-based education doctors, carers, families and the general public.
We want our website to help those affected by the disease and their families but also those interested closer to information about Fanconi Anemia.
Together We Can Make A Difference”
Fanconi Canada raises money for research into finding a cure and/or treatments for Fanconi Anemia. Fanconi Canada also raises awareness among members of the general public and the medical community about Fanconi Anemia, its diagnosis and methods of treatment and provides support to affected Canadian families.
We want to support families, children and adult patients with Fanconi anemia comprehensively!